{"id":847,"date":"2023-01-14T16:22:20","date_gmt":"2023-01-14T15:22:20","guid":{"rendered":"https:\/\/maisontabga.com\/thierrylecomte\/?p=847"},"modified":"2023-01-23T15:10:17","modified_gmt":"2023-01-23T14:10:17","slug":"sep-et-douleur","status":"publish","type":"post","link":"https:\/\/maisontabga.com\/thierrylecomte\/2023\/01\/14\/sep-et-douleur\/","title":{"rendered":"De la douleur"},"content":{"rendered":"<p>Ah, le <a href=\"https:\/\/www.sep-ensemble.fr\/symptomes-diagnostic\/troubles-sensitifs-sclerose-en-plaques#:~:text=Le%20signe%20de%20Lhermitte,dans%20les%20membres%20inf%C3%A9rieurs2.\" target=\"_blank\" rel=\"noopener\">signe de Lhermite<\/a>&#8230; Au bout d&rsquo;un certain temps avec la SEP, il convient de consentir : l&rsquo;existence est douleur. Matin, midi et soir, douleur. Supportables, att\u00e9nu\u00e9es, parfois temporairement oubli\u00e9es, mais douleurs et fatigue de cette douleur. Sorte de sur-douleur.<\/p>\n<p>&nbsp;<\/p>\n<p>Fini l&rsquo;id\u00e9al de la vie joyeuse, confortable, insouciante et dr\u00f4le. Les m\u00e9decins n&rsquo;y peuvent rien. Je ne leur en veux pas de ne pas pouvoir. Ils font ce qu&rsquo;ils peuvent, comme moi. Je ne vais pas me bourrer d&rsquo;antid\u00e9presseur. Je pr\u00e9f\u00e8re vivre comme \u00e7a. Je ne me plains pas. La plainte serait elle aussi sur-douleur. Comme le ressentiment.<\/p>\n<p>&nbsp;<\/p>\n<p>La pr\u00e9sence continue de la douleur m&rsquo;enfonce dans un r\u00e9el bien \u00e9pais et m&rsquo;en d\u00e9tache \u00e0 la fois. Elle m&rsquo;informe de l&rsquo;\u00e9preuve de la vie, de son co\u00fbt parfois exorbitant et de sa violence continue, pour, dans le m\u00eame temps, m&rsquo;y mettre \u00e0 distance. Intens\u00e9ment acteur, intens\u00e9ment spectateur, je me sais existant, c&rsquo;est-\u00e0-dire souffrant. Pas de plus vivants que nous, les malades, f\u00e9briles, sans cesse sur le qui-vive ! Dire que l&rsquo;on nous fait payer des trucs et des machins pour \u00ab vivre plus intens\u00e9ment \u00bb ! Nous, c&rsquo;est <em>gratos<\/em>. Merci qui, merci SEP. Ne soyons pas ingrat.<\/p>\n<p>&nbsp;<\/p>\n<p>Cette vie-l\u00e0 n&rsquo;est plus celle d&rsquo;avant. De celle-l\u00e0 je ne sais plus le go\u00fbt. J&rsquo;en ignore jusqu&rsquo;\u00e0 la possibilit\u00e9. Je l&rsquo;envisage comme un monde imaginaire, un songe ou un paradis perdu. C&rsquo;est pourquoi quand ils viennent et me parlent voyage, projet, avenir, rires, que puis-je r\u00e9pondre ?<\/p>\n<p>&nbsp;<\/p>\n<p>Rien.<\/p>\n<p>&nbsp;<\/p>\n<p>Ce silence les surprend, parfois les \u00e9nerve, je le sens. Il nous s\u00e9pare comme un ab\u00eeme de feu.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Ah, le signe de Lhermite&#8230; Au bout d&rsquo;un certain temps avec la SEP, il convient de consentir : l&rsquo;existence est douleur. Matin, midi et soir, douleur. Supportables, att\u00e9nu\u00e9es, parfois temporairement [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[10],"tags":[],"class_list":["post-847","post","type-post","status-publish","format-standard","hentry","category-chronique"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>De la douleur - Scl\u00e9rose, mon amour<\/title>\n<meta name=\"description\" content=\"Au bout d&#039;un certain temps avec la SEP, il convient de consentir : la vie est douleur. 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